Research Assistant - Neurogenetics/Neuromuscular

The University Department of Neurology is seeking a Research Assistant to support the Neurogenetics/Neuromuscular research team in projects investigating how genetic alterations cause disease of the nervous system. The Research Assistant will serve as primary coordinator for the Hereditary Spastic Paraplegia (HSP) clinic and the clinical research consortium, assisting physicians and nurse coordinators with all aspects of clinical research. Additionally, this position will serve as the primary assessor for all HSP clinical outcome measures as well as the backup assessor for Charcot-Marie-Tooth (CMT) specific outcome measures. 

Duties Include:

• Manage overall site coordination and activation for newly created hereditary spastic paraplegia clinic

• Perform research activities based on clinical evaluations of patients with HSP, Charcot-Marie-Tooth disease and other neurogenetic conditions.

• Manage overall site coordination and activation for newly created hereditary spastic paraplegia clinic
• Perform research activities based on clinical evaluations of patients with HSP, Charcot-Marie-Tooth disease and other neurogenetic conditions. 
• Become certified and perform HSP functional outcome measures, along with CMT assessments both in-person and virtually for clinical and research purposes. 
• Travel to investigator meetings, trainings, and as needed for research studies. 
• Facilitate and track research sample collection and shipments.

• Read and review relevant articles concerning Charcot Marie Tooth disease (CMT) and HSP.

   

• Read and understand the various protocols that constitute the The Spastic Paraplegia – Centers for Excellence Research Network (SP-CERN), Inherited Neuropathy Clinic (INC), Rare Disease Clinical Research Consortium (RDCRC), and the North American CMT Network

• Actively participate in and coordinate several protocols from the HS-CERN, INC, and industry sponsors

   

• Prepare reports and contribute to manuscripts.
• Assist with research projects being performed by other clinical team members.
• Collect data, analyze data, track data, prepare materials, and perform data entry for reports.

• Prepare bibliographies and abstracts for publication.

   

• Perform a variety of routine tasks related to the recruitment, enrollment, and monitoring of research subjects or to the research environment of the INC. 

• Obtain subject consent and assist with IRB submissions or equivalent protocol.

   

• Schedule patients (clinical and research)
• Assist in the preparation, calibration, and maintenance of equipment used in the clinic.
• Assist with procurement of supplies and materials.

For full job description, email contact below. 

Percentage of Effort: 100% (40 hours/week)

Pay Grade: 3A - https://hr.uiowa.edu/pay/pay-plans/professional-and-scientific-pay-structure 

Please note: This is a specified term position that will last 12 months. An extension may be reviewed after the initial 12 months but is not guaranteed.

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